Search
Product
About us
Contact
Blog

NIHR IBD BioResource: Case report form

Each participant recruited has an IBD-specific CRF completed by their clinical care team. These are non-exhaustive - we have the chance to ask for more information - but form the basis of analysis and recall.

Description

More detailed information about this field from each metasource.

Each participant recruited has an IBD-specific CRF completed by their clinical care team. These are non-exhaustive - we have the chance to ask for more information - but form the basis of analysis and recall.

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Webpage:

https://www.healthdatagateway.org/dataset/d2981964-3ff7-47e2-91e1-ac5812227a80

Webpage

More detailed information about this field from each metasource.

https://www.healthdatagateway.org/dataset/d2981964-3ff7-47e2-91e1-ac5812227a80

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Licence:

Name: HDR UK Innovation Gateway Access

Licence name

More detailed information about this field from each metasource.

HDR UK Innovation Gateway Access

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Licence URL

More detailed information about this field from each metasource.

https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Tags:

Tags
More detailed information about this field from each metasource.

IBD
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Crohn's
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

colitis
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

recall
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

clinical
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

CRF
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

feasibility
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

cohort discovery
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

ibd crohn's colitis recall clinical crf feasibility cohort discovery

More to explore:

1/20

NIHR BioResource: Case report form

Each participant recruited on the basis of their disease (rare or common) has a disease-specific CRF completed by their clinical care team. These are non-exhaustive-we have the chance to ask for more ...

NIHR IBD BioResource: SNP imputation data

SNP chip data can be used to impute many of the (non-rare) SNPs not included on the chips. The NIHR IBD BioResource is using a modified version of the UK Biobank protocol to improve the options for r ...

NIHR IBD BioResource: Health and Lifestyle Questionnaire

Most NIHR IBD BioResource participants complete a self-report form on recruitment. Typically this contains e.g. height, weight, smoking history and alcohol consumption, but also includes questions rel ...

NIHR IBD BioResource: Consent records

The NIHR IBD BioResource records consent dates and versions for each and every participant consent event. We also record use of opt-ins and opt-outs including pre-GDPR. This permits us to manage data ...

NIHR IBD BioResource: Demographic

The NIHR IBD BioResource acquires broad demographics – e.g. age, sex, ethnicity - from participants at recruitment. This is used to pre-screen or match participants when inviting them to take part in ...

NIHR IBD BioResource: Contact detail

The NIHR IBD BioResource acquires contact details - name, address, email address, phone/mobile number - from participants at recruitment. This is used to re-contact participants to invite them to take ...

NIHR IBD BioResource: Sample holding

NIHR IBD BioResource samples are held at the NIHR National Biosample Centre in Milton Keynes. Metadata on what is available should become available through the UK CRC Tissue Directory, as mandated by ...

NIHR IBD BioResource: SNP chip data

In order to do recall by genotype, participants have their DNA tested using one the SNP chip arrays from eg. Illumina and Affymetrix (now Thermosfisher). The current iteration is the UK Biobank v2.1 ...

NIHR IBD BioResource: NHS Trust data

10 NHS Trusts have been asked to provide detailed data on participants in their Trust. Categories of data requested include: test results; prescribing; imaging; digital pathology; data from disease-sp ...

IBD Registry

The IBD Registry captures longitudinal clinical data on IBD patients from NHS Trusts. The dataset includes demographics; diagnosis and phenotype; medications (greater details on biologics); interventi ...

Wellcome Sanger Institute: Whole Exome Sequencing

There is a substantial overlap between the NIHR IBD BioResource and the IBD UK Genetics Consortium (IBDGC). The NIHR BioResource provides some DNA samples. IBDGC data is being provided by the Wellcome ...

NIHR BioResource: Health and Lifestyle Questionnaire

Most NIHR BioResource participants complete a self-report form on recruitment. Typically this contains e.g. height, weight, smoking history and alcohol consumption, but also includes questions relati ...

IBD Registry COVID-19

A consented IBD dataset of 9,800 participants, with a further 30,000 ethically-permissioned records for research related to COVID-19 and IBD. Includes patient demographics, medications plus vaccinatio ...

Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE) - IBD

Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients ...

NIHR BioResource: Demographic

The NIHR BioResource acquires broad demographics – e.g. age, sex, ethnicity - from participants at recruitment. This is used to pre-screen or match participants when inviting them to take part in exp ...

NIHR BioResource: SNP imputation data

SNP chip data can be used to impute many of the (non-rare) SNPs not included on the chips. The NIHR BioResource is using a modified version of the UK Biobank protocol to improve the options for recal ...

NIHR BioResource: SNP chip data

NIHR BioResource: Whole Genome Sequencing

The NIHR BioResource ran the pilot for GEL's 100,000 Genomes Project. Most of the participants with rare disease were recruited on the basis of having no known diagnosis, and have had extensive work u ...

NIHR BioResource: Sample holding

NIHR BioResource samples are held at the NIHR National Biosample Centre in Milton Keynes. Metadata on what is available should become available through the UK CRC Tissue Directory, as mandated by Rese ...

NIHR BioResource: Returned datasets

The NIHR BioResource asks those collecting data on participants as part of sample-only or recall studies to offer data for re-use by others. These offers may be taken up in future.

Previous Next

Need help integrating and/or managing biomedical data?

Follow our Twitter for updates

Service status

Reach us:
[email protected]

Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine