Tag: clinical

A prospective national clinical audit dataset which aims to include information on the investigation, diagnosis, treatment, care planning and outomes of all children and young people with a new onset of epilepsy

Collection of samples and data across the following diseases: Multiple myeloma (disorder) Samples taken as part of the Cardamon clinical trial

Collection of samples and data across the following diseases: Multiple myeloma (disorder). Samples collected from myeloma patients at first relapse registered into the Myeloma XII trial, and sent to the following central labs: 1. Central immunology ...

Collection of samples and data across the following diseases: Diabetes mellitus type 1, Diabetes mellitus type 2, Fit and well, Maturity-onset diabetes of the young (disorder). NIHR Exeter Clinical Research Facility is a partnership between the Unive ...

A continuous, record-level dataset of hospital treatment and outcomes of patients with bowel cancer in England and Wales, including patient and tumour characteristics, route to diagnosis, diagnosis, treatment, length of stay, complications and outcom ...

A continuously ascertained, record level dataset of COPD patients attending pulmonary rehabilitation services in England Scotland and Wales. From March 2019; includes patient demographics, referral information, assessment, programme enrollment, disch ...

The NNAP assesses whether babies admitted to neonatal units receive consistent high quality care. This continuous audit assesses the care of babies admitted in England, Scotland and Wales. Data are downloaded from the BadgerNet patient record system ...

Collection of samples and data across the following diseases: Barrett's oesophagus (disorder), Malignant tumour of oesophagus, Malignant tumour of ovary, Malignant tumour of pancreas. OCTO was established in 2002 to run trials concerned with the prac ...

The NOGCA data set includes continuously ascertained, record-level data on the diagnosis, investigation and management) received in hospitals in England and Wales for patients with invasive, epithelial cancer of the oesophagus, gastro-oesophageal jun ...

Continuously clinical dataset of all patients in England and Wales presenting to secondary rheumatology services over age 16 years with suspected inflammatory arthritis. Includes demographics, diagnosis data, and baseline, 3 and 12 months follow ...

The PROFILE study is a longitudinal observational study of patients with Idiopathic Pulmonary Fibrosis and Nonspecific Interstitial Pneumonitis. Patients were recruited to the study within 6 months of diagnosis and followed up for three years. https: ...

The dataset contains continuously ascertained patient-level data for patients undergoing lower limb angioplasty in NHS hosptials in England, Wales, Scotland and Northern Ireland. It includes information on referral, pre-procedural investigations and ...

The dataset contains continuously ascertained patient-level data for patients undergoing lower limb vascular bypass in NHS hosptials in England, Wales, Scotland and Northern Ireland. It includes information on referral, indications, pre-procedural i ...

The dataset contains continuously ascertained patient-level data for patients undergoing lower limb amputation in NHS hosptials in England, Wales, Scotland and Northern Ireland. It includes information on referral, pre-procedural investigations, pro ...

The dataset contains continuously ascertained patient-level data for patients undergoing carotid endarterectomy in NHS hosptials in England, Wales, Scotland and Northern Ireland. It includes referral, pre-procedural investigations and risk scoring, p ...

The dataset contains continuously ascertained patient-level data for patients undergoing repair of an abdominal aortic aneurysm in NHS hosptials in England, Wales, Scotland and Northern Ireland. It includes information on referral, pre-procedural in ...

The FFFAP NAIF is a continuous, record-level audit of falls prevention prior to the hip fracture and post-falls care, for inpatient falls within acute, community and mental health hospital care in England and Wales. Data collection started January 2 ...

A continuously ascertained, record level dataset of paediatric patients aged 1-18 years admitted to hospital in England, Wales and Scotland since June 2019 with an asthma attack.  

Clinical continuous case record level dataset of all late fetal losses, stillbirths and neonatal deaths in the UK and Crown Dependencies. Contains information about the mother's health, lifestyle, pregnancy history, antenatal care, labour and deliver ...

Each participant recruited on the basis of their disease (rare or common) has a disease-specific CRF completed by their clinical care team. These are non-exhaustive-we have the chance to ask for more information-but form the basis of analysis and rec ...

Each participant recruited has an IBD-specific CRF completed by their clinical care team. These are non-exhaustive - we have the chance to ask for more information - but form the basis of analysis and recall.

GOSH is the custodian of the latest study dataset - IMPORT. All of the trial/study datasets include: full patient and tumour demographics, associated congenital abnormalities, tumour stage, treatment received and follow up for relapse and death. GOSH ...

Electronic health records for all neonatal unit admissions across England, Scotland and Wales as specified in the Neonatal Data Set (ISB 1595).

Project Data Sphere, LLC, operates a free digital library-laboratory where the research community can broadly share, integrate and analyze historical, de-identified, patient-level data from academic and industry cancer Phase II-III clinical trials. ...