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NIHR BioResource: Case report form

Each participant recruited on the basis of their disease (rare or common) has a disease-specific CRF completed by their clinical care team. These are non-exhaustive-we have the chance to ask for more information-but form the basis of analysis and recall.

Description

More detailed information about this field from each metasource.

Each participant recruited on the basis of their disease (rare or common) has a disease-specific CRF completed by their clinical care team. These are non-exhaustive-we have the chance to ask for more information-but form the basis of analysis and recall.

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Webpage:

https://www.healthdatagateway.org/dataset/5de9d313-fb9f-4dbf-a959-1329062eb1ef

Webpage

More detailed information about this field from each metasource.

https://www.healthdatagateway.org/dataset/5de9d313-fb9f-4dbf-a959-1329062eb1ef

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Licence:

Name: HDR UK Innovation Gateway Access

Licence name

More detailed information about this field from each metasource.

HDR UK Innovation Gateway Access

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Licence URL

More detailed information about this field from each metasource.

https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Tags:

Tags
More detailed information about this field from each metasource.

recall
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

clinical
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

CRF
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

feasibility
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

cohort discovery
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

recall clinical crf feasibility cohort discovery

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Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine