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IBD Registry

The IBD Registry captures longitudinal clinical data on IBD patients from NHS Trusts. The dataset includes demographics; diagnosis and phenotype; medications (greater details on biologics); interventions; clinical assessment and PROMS.

Description

More detailed information about this field from each metasource.

The IBD Registry captures longitudinal clinical data on IBD patients from NHS Trusts. The dataset includes demographics; diagnosis and phenotype; medications (greater details on biologics); interventions; clinical assessment and PROMS.

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Webpage:

https://www.healthdatagateway.org/dataset/e4a1be81-8f3c-4731-ae8a-7cbd594c78f5

Webpage

More detailed information about this field from each metasource.

https://www.healthdatagateway.org/dataset/e4a1be81-8f3c-4731-ae8a-7cbd594c78f5

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Licence:

Name: HDR UK Innovation Gateway Access

Licence name

More detailed information about this field from each metasource.

HDR UK Innovation Gateway Access

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Licence URL

More detailed information about this field from each metasource.

https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Tags:

Tags
More detailed information about this field from each metasource.

Inflammatory Bowel Disease
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

IBD
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Crohn's
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

colitis
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

NHS
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

pharmacovigilance
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Clinical Audit dataset
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

inflammatory bowel disease ibd crohn's colitis nhs pharmacovigilance clinical audit dataset

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Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine