Source | Match | ReputationScore* |
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Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE) - IBD
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients. The goals of the registry is to rapidly define t
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Inflammatory Bowel Disease datasets - Data profiling GWM
Imaging and bio-sample data sets related to patients with active and inactive Inflammatory Bowel Disease
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IBD Registry
The IBD Registry captures longitudinal clinical data on IBD patients from NHS Trusts. The dataset includes demographics; diagnosis and phenotype; medications (greater details on biologics); interventions; clinical assessment and PROMS.
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Crohn's Disease Metabolic Syndrome & Related Disease Outcomes
NIHR Bioresource DAA063:
This data base contains numerical data in Crohn's disease linking metabolic syndrome to related disease outcomes.
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IBD Registry COVID-19
A consented IBD dataset of 9,800 participants, with a further 30,000 ethically-permissioned records for research related to COVID-19 and IBD. Includes patient demographics, medications plus vaccinations, responses and care received April 2020-June 20
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*ReputationScore indicates how established a given datasource is. Find out more.