Imaging and bio-sample data sets related to patients with active and inactive Inflammatory Bowel Disease
inflammatory bowel disease crohn's disease imaging bio-sample active inactive patient information
NIHR Bioresource DAA063: This data base contains numerical data in Crohn's disease linking metabolic syndrome to related disease outcomes.
The IBD Registry captures longitudinal clinical data on IBD patients from NHS Trusts. The dataset includes demographics; diagnosis and phenotype; medications (greater details on biologics); interventi ...
A consented IBD dataset of 9,800 participants, with a further 30,000 ethically-permissioned records for research related to COVID-19 and IBD. Includes patient demographics, medications plus vaccinatio ...
NHS Tayside health board bowel screening program.
NHS Screening Services - Bowel Screening Data. The aim of the bowel screening programme is to identify cancer early when treatment is more likely to be successful and also remove precancerous growths.
A continuous, record-level dataset of hospital treatment and outcomes of patients with bowel cancer in England and Wales, including patient and tumour characteristics, route to diagnosis, diagnosis, t ...
Survey completed by consultant surgeons at each hospital in England and Wales on the availability of a range of services for patients with bowel cancer including palliative care, oncology, diagnostics ...
Continuously clinical dataset of all patients in England and Wales presenting to secondary rheumatology services over age 16 years with suspected inflammatory arthritis. Includes demographics, diag ...
Continuously ascertained collection for all patients in England and Wales presenting to secondary rheumatology services over age 16 years with confirmed inflammatory arthritis. Measures at diagnos ...
A registry of Hereditary Auto-inflammatory Disorder Mutations.
Contains organisational survey data from specialist rheumatology units in England and Wales, refreshed on an annual basis
A domain ontology for inflammatory diseases, with ICD-10 used as a foundation. Ontology is expanded to include medical therapies, anatomy, and symptoms. With the addition of synonyms and lay terms der ...
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients ...
Contains patient level data on the input, processes, and outcomes of care for adults undergoing emergency laparotomy (bowel surgery) in England and Wales. This is a continuous audit.
Application ontology for Ocular Immune-mediated Inflammatory Diseases, built from domain experts in ophthalmology, clinical guidelines, and enhanced with patient-preferred terms.
The Disease Ontology has been developed as a standardized ontology for human disease with the purpose of providing descriptions of human disease terms, phenotype characteristics and related medical vo ...
The NWL Primary Care Events holds coded interactions between NWL registered patients and GP using EMIS or S1. This includes all clinical and non-clinical events the GPs have recorded for the patient, ...
We are a leading national institution in brain MR imaging and molecular imaging (given cyclotron and radiopharmacy facilities). These pillars create the core medical imaging equipment infrastructure i ...
The PAIN Repository is a brain imaging archive for structural and functional magnetic resonance scans (MRI, fMRI and DTI) hosted at UCLA and open to all pain investigators.
PPMI is an observational clinical study to verify progression markers in Parkinson’s disease. The study is designed to establish a comprehensive set of clinical, imaging and biosample data that will b ...