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PROFILES Registry

Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship (PROFILES)’ is a registry for the study of the physical and psychosocial impact of cancer and its treatment from a dynamic, growing population-based cohort of both short and long-term cancer survivors. Researchers from the Netherlands Comprehensive Cancer Centre and Tilburg University in Tilburg, The Netherlands, work together with medical specialists from national hospitals in order to setup different PROFILES studies, collect the necessary data, and present the results in scientific journals and (inter)national conferences.

Description

More detailed information about this field from each metasource.

Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship (PROFILES)’ is a registry for the study of the physical and psychosocial impact of cancer and its treatment from a dynamic, growing population-based cohort of both short and long-term cancer survivors. Researchers from the Netherlands Comprehensive Cancer Centre and Tilburg University in Tilburg, The Netherlands, work together with medical specialists from national hospitals in order to setup different PROFILES studies, collect the necessary data, and present the results in scientific journals and (inter)national conferences.

metasource: re3data.org
version: re3data.org: PROFILES Registry; editing status 2022-04-04; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R35W7Z last accessed: 2022-11-04

Webpage:

https://www.profilesregistry.nl/

Webpage

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https://www.profilesregistry.nl/

Licence:

Name: other

Licence name

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other

URL: https://www.profilesregistry.nl/about-profiles-registry/dissemination-policy/

Licence URL

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https://www.profilesregistry.nl/about-profiles-registry/dissemination-policy/

Tags:

Tags
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hodgkin lymphoma
metasource: re3data.org
version: re3data.org: PROFILES Registry; editing status 2022-04-04; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R35W7Z last accessed: 2022-11-04

profiel studies
metasource: re3data.org
version: re3data.org: PROFILES Registry; editing status 2022-04-04; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R35W7Z last accessed: 2022-11-04

cancer
metasource: re3data.org
version: re3data.org: PROFILES Registry; editing status 2022-04-04; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R35W7Z last accessed: 2022-11-04

melanoma
metasource: re3data.org
version: re3data.org: PROFILES Registry; editing status 2022-04-04; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R35W7Z last accessed: 2022-11-04

hodgkin lymphoma profiel studies cancer melanoma

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Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine