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BRIAN App - Patient data; treatments, PROMs, multi-modal data and demographics

BRIAN is a patient support app created by The Brain Tumour Charity. It currently has approx. 4,500 users who use it to record information about their condition, treatments and medications, track quality of life, and more.

Description

More detailed information about this field from each metasource.

BRIAN is a patient support app created by The Brain Tumour Charity. It currently has approx. 4,500 users who use it to record information about their condition, treatments and medications, track quality of life, and more.

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Webpage:

https://www.healthdatagateway.org/dataset/3a0a0acd-c549-41f4-8188-14235decf473

Webpage

More detailed information about this field from each metasource.

https://www.healthdatagateway.org/dataset/3a0a0acd-c549-41f4-8188-14235decf473

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Licence:

Name: HDR UK Innovation Gateway Access

Licence name

More detailed information about this field from each metasource.

HDR UK Innovation Gateway Access

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

URL: https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

Licence URL

More detailed information about this field from each metasource.

https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/

metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Tags:

Tags
More detailed information about this field from each metasource.

brain tumour
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

The Brain Tumour Charity
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

BRIAN
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

PROMS
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

demographics
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

Quality of Life
metasource: HDR UK
version: extracted_at: 2022-09-05T08:28:24.125862

brain tumour the brain tumour charity brian proms demographics quality of life

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Data is amalgamated and only retrieved periodically.
Some of the resources used by the system:

® FAIRsharing.org
® Bioontology/Bioportal Terms
® Nucleic Acid Research - Database
® re3data.org
® bio.tools
® PubMed - Courtesy of the U.S. National Library of Medicine