Source | Match | ReputationScore* |
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HES Patient Reported Outcomes Measures (PROMs) data for CPRD GOLD
CPRD GOLD linked HES Patient Reported Outcomes Measures (PROMs) data on quality of life before and after common NHS elective surgical procedures. Note, these data are no longer routinely available; contact [email protected] to discuss.
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HES Patient Reported Outcomes Measures (PROMs) data for CPRD Aurum
CPRD Aurum linked HES Patient Reported Outcomes Measures (PROMs) data on quality of life before and after common NHS elective surgical procedures. Note, these data are no longer routinely available; contact [email protected] to discuss.
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BRIAN App - Patient data; treatments, PROMs, multi-modal data and demographics
BRIAN is a patient support app created by The Brain Tumour Charity. It currently has approx. 4,500 users who use it to record information about their condition, treatments and medications, track quality of life, and more.
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UK Renal Registry - Your Health Survey dataset
Patient-level data for adults with CKD who are under the care of NHS hospital renal centres in England. The data are collected using the 'Your Health Survey', which includes EQ5D-5L, POS-S Renal and PAM.
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*ReputationScore indicates how established a given datasource is. Find out more.