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Investigation Study Assay Tabular
Investigation Study Assay Tabular (ISA-Tab) describes the ISA Abstract Model reference implementation specified using the ISA-Tab format. ISA-Tab files are tab separated value (tsv) files, with specific labeled column structures. The ISA model consis
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Simple Omnibus Format in Text
Using Simple Omnibus Format in Text (SOFT), researchers can readily upload and download data. The resource is text-based so can be compatible with simple spreadsheets and data applications. A SOFT file can simultaneously contain both tabulated data a
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Ontology for Biomedical Investigations
The Ontology for Biomedical Investigations (OBI) is an ontology that provides terms with precisely defined meanings to describe all aspects of how investigations in the biological and medical domains are conducted. OBI fosters clear communication abo
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COVID-19 Global Rheumatology Alliance
COVID-19 Global Rheumatology Alliance aim to collect, analyze and disseminate information about COVID-19 and rheumatology to patients, physicians and other relevant groups to improve the care of patients with rheumatic disease.
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Extracorporeal Life Support Organization Registry
The Extracorporeal Life Support Organization (ELSO) is providing the ExtraCorporeal Membrane Oxygenation (ECMO) in COVID-19 website as a resource for centers who may be called on to manage COVID-19 patients.
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CDISC Operational Data Model
ODM is a vendor-neutral, platform-independent format (based on XML) for exchanging and archiving clinical and translational research data, along with their associated metadata, administrative data, reference data, and audit information. ODM facilitat
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European Renal Association COVID-19 Database
The European Renal Association COVID-19 Database is a European database collecting clinical information of patients on kidney replacement therapy with COVID-19.
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SECURE-Cirrhosis Registry
SECURE-Cirrhosis Registry is a secure, online, de-identified Personal Health Identifier (PHI)-free reporting registry for patients with chronic liver disease and post-liver transplantation
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COVID-HEP Registry
COVID-HEP Registry is a universal and collaborative registry project to collect data on patients with liver disease at any stage or liver transplants who develop laboratory-confirmed COVID-19. We are pleased to encourage reports from worldwide. Howev
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MicroArray Gene Expression Tabular Format
Sharing of microarray data within the research community has been greatly facilitated by the development of the disclosure and communication standards MIAME and MAGE-ML by the FGED Society. However, the complexity of the MAGE-ML format has made its u
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Minimum Information about Plant Phenotyping Experiment
MIAPPE is a reporting guideline for plant phenotyping experiments. It comprises a checklist, i.e., a list of attributes to describe an experiment so that it is understandable and replicable. It should be consulted by people recording and depositing p
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Minimum Information about a Cardiac Electrophysiology Experiment
Minimum Information about a Cardiac Electrophysiology Experiment (MICEE) is a reporting standard developed by an international group of leading experimental teams comprising an explicit minimum set of information deemed necessary for reproduction and
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CDISC Clinical Data Acquisition Standards Harmonization
CDASH establishes a standard way to collect data in a similar way across studies and sponsors so that data collection formats and structures provide clear traceability of submission data into the Study Data Tabulation Model (SDTM), delivering more tr
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CDISC Study Data Tabulation Model
SDTM provides a standard for organizing and formatting data to streamline processes in collection, management, analysis and reporting. Implementing SDTM supports data aggregation and warehousing; fosters mining and reuse; facilitates sharing; helps p
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Discovery VIRUS COVID-19 Registry
VIRUS is a cross-sectional, observational study and registry of all eligible adult and pediatric patients who are admitted to a hospital.
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Gel electrophoresis Markup Language
GelML is a data exchange format for describing the results of gel electrophoresis experiments. GelML is developed as a HUPO-PSI working group.
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Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database
Given the interest in the emerging and evolving coronavirus (COVID-19) pandemic and the questions regarding how this will impact patients with atopic dermatitis (AD) or alopecia who are treated with or without systemic immunomodulating medication, we
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Functional Genomics Experiment Markup Language
Functional genomics experiments present many challenges in data archiving, sharing and querying. As the size and complexity of data generated from such experiments grows, so does the requirement for standard data formats. To address these needs, the
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Coronavirus and MS Reporting Database
COViMS (COVID-19 Infections in MS & Related Diseases) is a joint effort of the National MS Society, Consortium of MS Centers and Multiple Sclerosis Society of Canada to capture information on outcomes of people with MS and other CNS demyelinating dis
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Coronavirus and Psoriasis Reporting Registry
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-Psoriasis) is an international, pediatric and adult registry to monitor and report on outcomes of COVID-19 occurring in psoriasis patients.
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Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE) - IBD
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients. The goals of the registry is to rapidly define t
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Gating-ML
The Gating-ML specification represents a proposal on how to form unambiguous XML-based gate definitions that may be used independently as well as included as one of the components of ACS. The specification supports rectangular gates in n dimensions (
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Coronavirus and Celiac Disease Reporting Database
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-Celiac) is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in patients with celiac disease. We encourage clinicians world
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SECURE-Sickle Cell Disease Registry
This registry is designed to capture pediatric and adult COVID-19 cases that are occurring across the world in patients living with sickle cell disease. The goal of the registry is to report on outcomes of cases of COVID-19 in this population of pati
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MS Global Data-Sharing Initiative
The Multiple Sclerosis International Federation (MSIF) and the Multiple Sclerosis Data Alliance (MSDA) have teamed up to form a Global Data Sharing Initiative to achieve insights on the effect of COVID-19 in people with MS as fast as possible, with t
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HIV and COVID-19 Registry in Europe
In March the NEAT ID Foundation initiated the development of a simple Data “Dashboard” to monitor the progress of COVID-19 in HIV infected patients across Europe in real time. The Dashboard shows at European and Country level the number of cases repo
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MIAME Notation in Markup Language
MINiML (MIAME Notation in Markup Language, pronounced 'minimal') is a data exchange format optimized for microarray gene expression data, as well as many other types of high-throughput molecular abundance data. MINiML assumes only very basic relation
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American Society of Clinical Oncology (ASCO) Survey on COVID-19 in Oncology Registry
The American Society of Clinical Oncology (ASCO) Survey on COVID-19 in Oncology Registry (ASCO Registry) aims to help the cancer community learn more about the patterns of symptoms and severity of COVID-19 among patients with cancer, as well as how C
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The American Society for Hematology Research Collaborative COVID-19 Registry for Hematologic Malignancy
The ASH Research Collaborative (ASH RC) COVID-19 Registry for Hematology, a global public reference tool that is part of the ASH RC Data Hub platform, captures data on individuals who test positive for COVID-19, have a hematologic condition (past or
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Portfolio Management Application
The Portfolio Management Application (PMA) is a system for tracking grants and producing reports - Users can access grant data through a query interface and a variety of pre-defined forms and reports
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UNESCO Thesaurus
The UNESCO Thesaurus is a controlled and structured list of concepts used in subject analysis and retrieval of documents and publications in the fields of education, culture, natural sciences, social and human sciences, communication and information.
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Neurophysiology Data Translation Format
The purpose of the Neurophysiology Data Translation Format (NDF) is to provide a means of sharing neurophysiology experimental data and derived data between services and tools developed within the CARMEN project. This document specifies the NDF. The
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*ReputationScore indicates how established a given datasource is. Find out more.