Tag: cystic fibrosis
Found 11 sources
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Cystic Fibrosis Patient CFQ-R
The UK Cystic Fibrosis Registry CFQ-R is made up of many data items relating to the quality of life tool 'Cystic Fibrosis Questionnaire - Revised' captured for CF patients. The UK CF Registry is a centralised database of all 60 CF centres across the
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Cystic Fibrosis Patient NTM culture
The UK Cystic Fibrosis Registry NTM culture is made up of many data items relating to NTM cultures grown from samples taken during CF patient encounters at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centres across
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Cystic Fibrosis Patient Transplants
The UK Cystic Fibrosis Registry Transplants is made up of many data items relating to transplant journey(s) taken by CF patients at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manuall
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Cystic Fibrosis Patient Sweat Tests
The UK Cystic Fibrosis Registry Sweat Chloride Tests is made up of data items relating to sweat chloride tests taken during CF patients encounters at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centres across the UK
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Cystic Fibrosis Patient Demographics
The UK Cystic Fibrosis Registry Demographic is made up of data items relating key demographic information about CF patients, relating to their diagnosis and genotype. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Da
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Cystic Fibrosis Patient Liver Enzyme
The UK Cystic Fibrosis Registry Liver Enzymes is made up of data items relating to liver enzyme tests taken during CF patient encounters at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are
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Cystic Fibrosis Patient Tendon Rupture
The UK Cystic Fibrosis Registry Tendon Rupture is made up of data items relating to patient tendon rupture with reference to treatment and location of the ruptured tendon. The UK CF Registry is a centralised database of all 60 CF centres across the U
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Cystic Fibrosis Patient Chronic Medication
The UK Cystic Fibrosis Registry Chronic Medications is made up of data relating to chronic medications taken by CF patients (taken for more than 3 months.). Medications have been entered by CF centres, primarily relating to pulmonary conditions. The
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Cystic Fibrosis Patient Microbiology Cultures
The UK Cystic Fibrosis Registry Culture is made up of many data items relating to microbiology and cultures grown from samples taken during CF patient encounters at NHS hospitals in UK. The UK CF Registry is a centralised database of all 60 CF centre
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Cystic Fibrosis Patient Annual Review Encounters
The UK Cystic Fibrosis Registry Annual Review Encounters is made up data recorded at the CF Centre: height, weight, lung function tests, respiratory cultures, x-ray results, and the results of other tests carried out at the hospital. The UK CF Regist
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UK Cystic Fibrosis Registry (CYFI)
The UK Cystic Fibrosis Registry is a national, secure, centralized database sponsored and managed by the Cystic Fibrosis Trust, with UK National Health Service (NHS) research ethics approval and consent from each person for whom data are collected. F
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*ReputationScore indicates how established a given datasource is. Find out more.
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