Cystic Fibrosis Patient Annual Review Encounters
The UK Cystic Fibrosis Registry Annual Review Encounters is made up data recorded at the CF Centre: height, weight, lung function tests, respiratory cultures, x-ray results, and the results of other tests carried out at the hospital. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manually entered in calendar years by CF clinical teams for the 99% of people with a diagnosis of CF who consent to their data being donated to the Registry. Data are entered onto a secure web-portal. For more information please see www.cysticfibrosis.org.uk/registry and 'Data Resource Profile: The UK CF Registry' published in the International Journal of Epidemiology (2018 Feb 1;47(1)9-10e).
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The UK Cystic Fibrosis Registry Annual Review Encounters is made up data recorded at the CF Centre: height, weight, lung function tests, respiratory cultures, x-ray results, and the results of other tests carried out at the hospital. The UK CF Registry is a centralised database of all 60 CF centres across the UK. Data are manually entered in calendar years by CF clinical teams for the 99% of people with a diagnosis of CF who consent to their data being donated to the Registry. Data are entered onto a secure web-portal. For more information please see www.cysticfibrosis.org.uk/registry and 'Data Resource Profile: The UK CF Registry' published in the International Journal of Epidemiology (2018 Feb 1;47(1)9-10e).
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Webpage:
https://www.healthdatagateway.org/dataset/ca2c6ec0-00ce-42fc-a077-88911259576cWebpage
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https://www.healthdatagateway.org/dataset/ca2c6ec0-00ce-42fc-a077-88911259576c
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Licence:
Name: HDR UK Innovation Gateway AccessLicence name
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HDR UK Innovation Gateway Access
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
Licence URL
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https://www.hdruk.ac.uk/infrastructure/gateway/terms-and-conditions/
metasource: HDR UKversion: extracted_at: 2022-09-05T08:28:24.125862
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