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TwinsUK
TwinsUK follows the lives of adult twins to understand how genetic variation relates to health and ageing. Over 30 years, collected data comprises self-reported, physical and cognitive measures, biochemical measures, 'omics and a wealth of biosamples
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Webex Cohort
Randomized controlled trial of exercise vs standard care in patients with radiographic and clinical knee OA.
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KPIC
9000 people aged >40 characterised with knee pain, other sites of pain, depression and anxiety, quality of life and medications etc.
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DOLORISK
Cross-sectional deeply phenotyped cohort with painful and painless neuropathy, focusing on diabetic polyneuropathy and extreme/rare neuropathic pain disorders.
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Omega 3 Cohort
A nutritional interventional study of middle-aged women with body pain, anxiety, depression, fatigue QoL serum and faecal biomarkers and baseline and follow-up.
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BathTAP Headache Cohort 1
The BathTAP headache study explores the effect of a headache on cognitive performance .
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BathTAP Updating Cohort 1
The BathTAP updating study explores the effect of pain status on n-back task performance in a sample drawn from the general population
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BathTAP Headache Cohort 2
A replication and extension of the BathTAP headache study explores the effect of a headache on cognitive performance.
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GoDARTS
Genetics of Diabetes Audit and Research in Tayside Scotland (GoDARTS) contains phenotypic data (clinical and lifestyle factors), questionnaire responses and clinical examination results of over 16,000 diabetes patients in the Tayside region of Scotla
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BathTAP Switching Cohort 3
The BathTAP Switching study explores the effect of pain status on performance on four different versions of a computerised switching task in a sample drawn from the general population.
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BathTAP Switching Cohort 2
The BathTAP Switching study explores the effect of pain status on task performance on three versions of a computerised switching task in a sample drawn from the general population.
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GOAL
X-rays at baseline for 2000 hip and knee OA patients and 1200 controls, serum and urine samples for all, WOMAC pain questionnaires, follow up pain, QoL, medical history surgery history 10 years later for a subset of n=1200 participants.
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CAPS
The CAPS Study contains pain and symptom severity related information about patients with carpal tunnel syndrome, the most common of the peripheral neuropathies, both prior to and following carpal tunnel surgery.
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1958 National Child Development Study - Pain data
This collection specifically relates to a short pain survey (self-completion booklet) completed by NCDS participants in 2002-3.
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HIV-POGO
Clinical Phenotyping and Genotyping of HIV-Associated Sensory Neuropathy. This study contains pain related information reported by people living with HIV. It includes those with and without neuropathy and with and without neuropathic pain.
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Decode-ME
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic disease affecting an estimated 250,000 people in the UK. DecodeME is the world’s largest ME/CFS genetic study. It has Patient and Public Involvement at its heart.
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HIV PiNS
The HIV Pain in Neuropathy Study contains pain related information about HIV patients suffering from HIV-associated sensory neuropathy (HIV-SN), a frequent complication of HIV infection and major source of morbidity.
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Generation Scotland: Scottish Family Health Study
A biobank of data and samples for medical research. GS:SFHS is an intensively phenotyped, family-based cohort for the study of the genetic basis of common complex diseases and response to treatments, with consent to record linkage and recontact.
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Oxford Carpal Tunnel Syndrome (CTS) Cohort
This is a cohort study in patients with carpal tunnel syndrome. It contains both cross sectional (pre-surgery) as well as longitudinal data from patients undergoing decompression surgery (pre and 6 months post surgery).
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Neuropathic Pain Profiling in Retroviral Infection Study (NIPPR)
The Neuropathic Pain Profiling in Retroviral Infection Study: NIPPR. This study contains pain related information reported by people living with Human T-lymphotrophic cell virus (HTLV-1) infection. It includes those with and without neuropathic pain.
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*ReputationScore indicates how established a given datasource is. Find out more.